The Kawasaki Disease Forum

This is a summary about my son's condition today. Just wanna share...

My son was diagnosed with Kawasaki syndrome when he was one year old. After 10 days of not knowing what was going on, they finally gave him IVIG and he got well immediately. Unfortunately he got a big aneurysm on one side of his coronary arteries, around 10 mm.

He was on coumadin and 80 mg aspirin until he was about 9 years old. That is when I took him off coumadin after consulting with the doctor. The doctor gave no strong preference either way, so I stopped and had him on aspirin only (one a day, 80 mg). About a year ago we had him do a stress test and nuclear medicine at Stanford. Nothing serous shown.

Three months ago, I took him to a new doctor (same office, the prev doctor retired). The new doctor ordered a MRI. The result was good, that his aneurysm didn't get bigger and things seem to heal, no clogging. He was surprised that my son did well w/o coumadin and was on a low dosage of aspirin. He recommended 2 tablets a day (aspirin 80 mg) and asked me if I want to put my son on coumadin again. He said "the book" called for coumadin, but given that he did well w/o it, he would not talk me into it. At the end we decided to go with aspirin only.

About a year ago my son often complained of some one-off heart pain but not anymore. He didn't do contact sport, was able to do PE like other freshman high school kids. Compared to my other 2 girls, he rarely got sick. He was not strong, small built, but was able to sustain running, bicycling ...

I told him today to own this thread and update it every 6 months, hopefully providing useful into and hope to new parents. I used to do so, and this forum gave me strength and hope when I first got the bad news years ago.