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Kawasaki Disease Awareness Florida

Posted: Thu Jul 17, 2014 6:26 pm
by larocho
Hello Florida and Neighboring States!
My son Nicholas got sick with this rare disease at a early infant age of 7 months going on 8 months old. He is now a healthy 9 year old big boy, the only set back is he's having chest pain every now and then. I've taken him every year to get clearance from a pediatric cardiologist since he did develop an aneurysm post treatment with IVIG 3X. He wasn't diagnosed quickly enough because his pediatrician here in Brevard county Dr. Alli did not have an idea of Kawasaki disease. He wasn't diagnosed until 7 days later at the ER thank goodness. I'm concerned with his physical development such as joints and heart health. We need to start a Kawasaki awareness group in Florida so parents like myself won't go through what I went through not knowing much. Thank goodness for this forum and meeting Diane Solomon who helped me through the worst phase and she educated me so much on what to ask the dr's.