Regression!

Personal stories of individuals and families affected by Kawasaki disease
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Ekorkofigas
10+ Posts
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Joined: Sat Mar 30, 2013 10:02 am
Location: Chicago, IL USA

Regression!

Post by Ekorkofigas »

We brought our now 9 month old son in for an echo yesterday (about 3 months post kawasaki), any we found out that his aneurysms have gotten smaller! He had multiple large and moderate aneurysm, they now appear to be small and moderate sized! woohoo! We were able to go down to one blood thinner yesterday, such a great feeling! It was so amazing to get good news after such a challenging few months, I wanted to share. Keep your hopes up and continue the prayers for your little ones effected by kawasaki disease! :D

IsaiahsMom
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Joined: Mon Apr 02, 2012 11:18 pm
Location: Toronto, Canada
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Re: Regression!

Post by IsaiahsMom »

That's great news! I am so happy for you and your family. I wish your son only good health from now on! Out of curiosity, did they take away the ASA or the Lovenox?

Ekorkofigas
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Posts: 18
Joined: Sat Mar 30, 2013 10:02 am
Location: Chicago, IL USA

Re: Regression!

Post by Ekorkofigas »

We dropped the lovenox, which is awesome, so no more injections. Now only aspirin, we discussed the possibility of using only plavix, but they were pleased enough with the regression the dr felt comfortable with aspirin, plus their is more clinical data with children on aspirin vs plavix.

IsaiahsMom
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Joined: Mon Apr 02, 2012 11:18 pm
Location: Toronto, Canada
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Re: Regression!

Post by IsaiahsMom »

That's great. I am sure you and he are glad to be rid of the Lovenox injections. Lately I have read some negative articles regarding Plavix, so the ASA is probably the better option.

Farah81
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Joined: Sun Feb 18, 2018 12:43 pm

Re: Regression!

Post by Farah81 »

Hi ekorkofigas....

Hows ur son now???the aneurysm totally healed?

Farah81
New Member
Posts: 7
Joined: Sun Feb 18, 2018 12:43 pm

Re: Regression!

Post by Farah81 »

Hi ekorkofigas....

Hows ur son now???the aneurysm totally healed?

Cici
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Joined: Fri Jan 12, 2018 2:44 pm

Re: Regression!

Post by Cici »

Hi Ekorkofigas! I sent an email to you on Feb 24th via my KD Forum account. Hope you received my email and looking forward to connecting with you.

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