New York - Metro Area Event

Discuss upcoming parent, research, and physician events

New York - Metro Area Event

Postby Greg on Fri Apr 22, 2005 6:53 pm

I've also been in touch w/ NY-area families and doctors about an event (e.g., parent symposium). Please post here or email me if you'd like to get involved.
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Postby Stephanie on Sat Apr 23, 2005 1:15 am

Greg,
Any idea when this might happen?

Stephanie
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Postby Greg on Sat Apr 23, 2005 3:49 am

Perhaps in the fall, but will depend.
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NY symposium

Postby Greg on Mon May 02, 2005 7:24 pm

I'm in active discussions right now w/ a partner hospital in NY about an event. I'd love to get other parents and area hospitals hooked in to the planning. Please contact me if you are interested and can help.

Greg
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Postby Greg on Thu May 12, 2005 1:15 am

Looks like we have a date: October 1. More planning needs to be done on specific aspects of this event. Please post here if you'd like to help.
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Postby Caroline on Thu May 26, 2005 4:32 pm

Hi Greg,
I live in the NY area and am very interested in becoming involved in any events that are available. My son was just discharged this past Saturday (5-21-05) after being treated for KD.
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NY event

Postby Greg on Fri May 27, 2005 6:51 pm

Hi Caroline, send me an email at mailto:gregorychin@yahoo.com and we can chat.

Greg
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Postby elizbuck on Tue Jun 28, 2005 1:13 am

Greg, I would be very interested in attending a NY area event. Do you have a location for it? I live in CT. My daughter was diagnosed with KD in June, 2003 and treated at Yale-New Haven Hospital. Have you contacted any Drs. at Yale about participating? Let me know if and how I can help with the planning aspects.
Liz
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Symposium

Postby Delissalex on Sun Jul 03, 2005 11:52 pm

My son was discharged on 10 june 2005 after being treated for KD. We live in Maryland but are from NY. I would be very interested in going and being apart of any meetings or groups.
[lease email me with any information
mailto:delissalex@earthlink.net
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NY Area Event

Postby Greg on Fri Aug 12, 2005 6:06 pm

[quote][i]Originally posted by Greg[/i]
Hi Caroline, send me an email at mailto:gregorychin@yahoo.com and we can chat.

Greg [/quote]

Hi Everyone,

I just got an email from our contact at the NY-area hospital that is hosting the symposium. It looks like because of a scheduling conflict, the date will need to change. I'll keep you posted. Thanks for your patience.
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NY Events

Postby cheely_ann on Mon Aug 15, 2005 3:09 pm

[quote][i]Originally posted by Greg[/i]
I'm in active discussions right now w/ a partner hospital in NY about an event. I'd love to get other parents and area hospitals hooked in to the planning. Please contact me if you are interested and can help.

Greg [/quote]

I also would like to participate in any events in the New York Metro area. Please include m ein your distribution list.
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NY area event

Postby Beth133 on Wed Oct 19, 2005 2:02 am

[quote][i]Originally posted by Greg[/i]
I've also been in touch w/ NY-area families and doctors about an event (e.g., parent symposium). Please post here or email me if you'd like to get involved. [/quote]

Hello Greg - Has the NY event happened. I have a daughter who had KD in Sept. 2002. I would be interested in attending or even maybe being involved if it has not happened yet.
Thank you.
Beth
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NY event

Postby Greg on Fri Oct 21, 2005 1:12 pm

[quote][i]Originally posted by Beth133[/i]
[quote][i]Originally posted by Greg[/i]
I've also been in touch w/ NY-area families and doctors about an event (e.g., parent symposium). Please post here or email me if you'd like to get involved. [/quote]

Hello Greg - Has the NY event happened. I have a daughter who had KD in Sept. 2002. I would be interested in attending or even maybe being involved if it has not happened yet.
Thank you.
Beth [/quote]

Hi Beth,

The team from NY said they had to post-pone, probably until early next year. As soon as I have more info, we'll post something on the KDF web site as well as here. If you want to help w/ that event, send me an email and I'll pass along your contact info to the team.

By the way, I'll be traveling through mid-November so may not be able to reply to emails until I return.

Best regards,

Greg
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Postby jenn on Sat Nov 19, 2005 7:40 pm

Hello

My dauhter was dx this summer. I would love to help in any way. Please contact me at any time.

Jenn
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