The Kawasaki Disease Forum

I would definately ask the docs about the antibiotics. They should have already told you to stop those if they have her the IVIG. Make sure they do follow Echo's frequently. Our daughters first Echo was good. She was diagnosed on Day 6. However, 48 hours later, she had 3 aneurysms. Also make sure yo...

I am sorry to hear your son is struggling with this disease. I posted my daughters story (actually copied and pasted it from my journal) that I tried to keep on here... I is titled Olivia's Story. She was diagnosed Aug 5th of this year. She had her last Echo about three weeks ago and the aneurysms a...

Is anyone aware of any KD Events in the Dallas Texas area???

Our daughter had to have two IVIG treatment, both worked, but the fever returned before the 48 hr mark and she also had three doses of high dose Steroids, then was discharged and 8 hours later the fever was back again. So this time she was treated with Remiciad. She did have the rash on her face, bu...

My daughter only seemed aggressive twice, but that was while in the hospital after the high dose steroids. We asked the attending pediatrician and he just chalked it up to "roid rage". We have been home for 3 days now and she dosent seem to be aggressive at all, although she is still somewhat irrita...

Sunday evening July 31st we noticed our daughter Olivia was not acting her normal self. She seemed fine earlier in the day as she played in the pool and with her cousin. Monday Aug 1st, my sister-in-law called me stating that Olivia woke from a nap with a fever of 104.9 and was complaining of a sore...