The Kawasaki Disease Forum

Hi anyone,

I was wondering if anyone knows of any events of KD in South Florida?

If not who should I go to for starting one to raise awareness.

Hi all, It was just four years ago, when my daughter was diagnosed with the worst case of Kawasaki Disease at Joe DiMaggio hospital. She has successfully recovered; thanks to all the Gamma Globulin infusions and Aspirins. However, four years later and she has been complaining about burning in her ha...

Thank you guys for your post. I just really have to relax; this disease surely came at a bad time. And now that she has it I just can't help but to think about something [*]happening. I really just have to trust in God and pray more. I know He has her under His wings....

Your story does sound like your son may have Kawasaki. However, some kids have survived past the 10 day time period. Just stay positive and strong for your son; it can be rough thinking about all the bad things that could happen. Just know it will be ok

HI Beth,

Trust I can understand...its been rough for me mentally. Sometimes I see things on my daughter that isn't there or just constantly asking her questions if she's tired. Just stay positive...

I really agree that the their should be a major push on this disease as it continues to affect a lot of children. Some segments on the news and so forth to raise awareness...

Evening to whoever read this post, My 5 year old daughter was diagnosed with Kawasaki Disease back in April 2011. And let me tell you from the experience I've been so paranoid with her doing anything or going anywhere!!! I keep reading more post with kids with this disease suffers some major heart o...