It was been quite a while since I last posted. Bobby is now in 2nd grade and I can't believe how such a little man he is!
We followed up with all the doctors regarding his walking on tip toe. After the neurological assessment (normal), MRI to check if he has a tethered spinal cord (negative), countless physical therapy appointments to stretch his muscles and 1 full year of Public School PT assistance; Bobby STILL walks on his tip toes.
We are currently taking a break from that round of Doctors because no one can seem to suggest a plan of action.
We saw Dr. Newburger in December 2013, for our annual echo. They completed a standard echo to verify measurements and get a baseline before the stress echo. He had a new technician who used a different angle to view the left side of his heart. They have viewed these arteries many times in the past without seeing anything unusual. This time, unsure if it's because of the new angle or a new development, there is an "artifact" and they are not sure of what it is. It could be an anomaly, it could be part of the remodeling that just appears different due to the angle or it could be the beginnings of calcification. There is no obstruction and Bobby has not had any incidents of chest pain or breathlessness so she is not overly concerned. She did say that Bobby's stress echo (completed after they found the "artifact") looked good and she was impressed with how much of the test he was able to complete. We have a repeat echo scheduled for June 2014 so stay tuned and we'll keep you posted
He remains on 1 (81mg) aspirin a day, indefinitely. What sports are your children participating in? Bobby does not have any restrictions so he played t-ball last summer and has played 2 years of soccer. I was surprised when Dr. Newburger mentioned that she was not thrilled with soccer because of "heading" the ball and suggested that we try to steer Bobby to more individual sports like tennis, golf, etc.. Just wondering what your take on it is
Thanks for listening!