Regression!

Personal stories of individuals and families affected by Kawasaki disease
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Ekorkofigas
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Joined: Sat Mar 30, 2013 10:02 am
Location: Chicago, IL USA

Regression!

Post by Ekorkofigas » Wed Jun 12, 2013 11:00 pm

We brought our now 9 month old son in for an echo yesterday (about 3 months post kawasaki), any we found out that his aneurysms have gotten smaller! He had multiple large and moderate aneurysm, they now appear to be small and moderate sized! woohoo! We were able to go down to one blood thinner yesterday, such a great feeling! It was so amazing to get good news after such a challenging few months, I wanted to share. Keep your hopes up and continue the prayers for your little ones effected by kawasaki disease! :D

IsaiahsMom
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Location: Toronto, Canada
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Re: Regression!

Post by IsaiahsMom » Thu Jun 13, 2013 12:59 am

That's great news! I am so happy for you and your family. I wish your son only good health from now on! Out of curiosity, did they take away the ASA or the Lovenox?

Ekorkofigas
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Joined: Sat Mar 30, 2013 10:02 am
Location: Chicago, IL USA

Re: Regression!

Post by Ekorkofigas » Thu Jun 13, 2013 6:32 am

We dropped the lovenox, which is awesome, so no more injections. Now only aspirin, we discussed the possibility of using only plavix, but they were pleased enough with the regression the dr felt comfortable with aspirin, plus their is more clinical data with children on aspirin vs plavix.

IsaiahsMom
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Re: Regression!

Post by IsaiahsMom » Fri Jun 14, 2013 10:02 pm

That's great. I am sure you and he are glad to be rid of the Lovenox injections. Lately I have read some negative articles regarding Plavix, so the ASA is probably the better option.

Farah81
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Re: Regression!

Post by Farah81 » Sun Feb 18, 2018 11:50 pm

Hi ekorkofigas....

Hows ur son now???the aneurysm totally healed?

Farah81
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Joined: Sun Feb 18, 2018 12:43 pm

Re: Regression!

Post by Farah81 » Sun Feb 18, 2018 11:51 pm

Hi ekorkofigas....

Hows ur son now???the aneurysm totally healed?

Cici
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Re: Regression!

Post by Cici » Tue Mar 06, 2018 7:21 pm

Hi Ekorkofigas! I sent an email to you on Feb 24th via my KD Forum account. Hope you received my email and looking forward to connecting with you.

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