We are at it again, we were just released from the hospital yesterday after my daughter emma was dx with KD for the third time. this time was 10 months from the last time. she spent her 4th birthday in the hospital. this time started exactly the same as last time. we are fortunate to have amazing doctors here and to be so informed from you all that we were admitted to the hospital on day 1. we still had to wait the 5 days before she got the IVIG, but we were better able to manage the systoms and keep her more comfortable. She has much more liver involement this time, her LFT's were 1,224 when she was tested on day 1, they have since come down to 234 but are still grossly high as they should be between 30-50, so we are seeing a GI doctor on top of the cardiologist and the reumatologist and having blood drawn every day.
Has anyone else had this 3 times? our doctors say its unheard of but she definately has full blown KD.
she's calling me..
thanks for listening.