Long term joint pain

Personal stories of individuals and families affected by Kawasaki disease
Nancy
KD Forum Leader
Posts: 668
Joined: Mon Apr 25, 2005 6:49 am

Re: Long term joint pain

Post by Nancy » Tue Jan 23, 2018 2:23 pm

hi

Has she seen a pediatric rheumatologist ?

nancy

ladydanette
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Re: Long term joint pain

Post by ladydanette » Tue Jan 23, 2018 4:27 pm

The 1st available appointment to see the Pediatric Rheumatologist is May 10, 2018. We are currently at her Pediatricians office as I type. What questions should I ask?

Utahmom
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Posts: 11
Joined: Fri Feb 09, 2018 10:53 pm

Re: Long term joint pain

Post by Utahmom » Sat Feb 17, 2018 7:20 am

We are about 30 days out. NO IVIG.
They were too late fighting over what he had.
He woke with knee to ankle pain about Day 22.
Today, he woke with swollen joints in thumb, pointer and middle man. This us absolutely not normal.
Never happened before this.

ladydanette
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Re: Long term joint pain

Post by ladydanette » Tue Feb 20, 2018 9:31 am

This joint pain is a nuisance. The DR's ran test and everything supposedly came back normal but she still complains and has trouble with pain in her back, her knees, her shoulders, her hip at times she has trouble walking. The Dr stated it's just growing pains. This hurts me terribly for her because there seems to be no help for us.

ladydanette
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Re: Long term joint pain

Post by ladydanette » Tue Feb 20, 2018 9:48 am

This is what her Dr stated for our last visit February 16, 2018.


02/19/2018 02:31 AM
Growing pains

Danette,

After your visit I had some time to review Desi's leg pains in more detail. After further consideration I am more confident that her pains represent growing pains and not some more worrisome condition. The examination was normal, as were her labs and x-rays.

Growing pains have the following characteristics:

Pain typically occurs late in the day or awakens the child.
Pain must be severe enough to interrupt normal activity, including sleep.
Pain is not specifically related to the joints.
Pain occurs at least monthly for at least three months.
Pain is intermittent, with symptom-free periods of at least days.
Pain is accentuated by increased activity during the day
The physical examination is normal.
Testing is normal.

At this time I feel that additional testing is not warranted, as it is unlikely to reveal any diseases and would unnecessarily irritate her.

For now, focus on pain relief with Tylenol and diclofenac gel. Continue to keep her involved in physical activity.

If you have any further questions don't hesitate to contact me.
Regards,
Dr. Elkins

ladydanette
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Posts: 7
Joined: Tue Jan 23, 2018 11:51 am

Re: Long term joint pain

Post by ladydanette » Tue Feb 20, 2018 9:50 am

This is what her Dr stated for our last visit February 16, 2018.


02/19/2018 02:31 AM
Growing pains

Danette,

After your visit I had some time to review Desi's leg pains in more detail. After further consideration I am more confident that her pains represent growing pains and not some more worrisome condition. The examination was normal, as were her labs and x-rays.

Growing pains have the following characteristics:

Pain typically occurs late in the day or awakens the child.
Pain must be severe enough to interrupt normal activity, including sleep.
Pain is not specifically related to the joints.
Pain occurs at least monthly for at least three months.
Pain is intermittent, with symptom-free periods of at least days.
Pain is accentuated by increased activity during the day
The physical examination is normal.
Testing is normal.

At this time I feel that additional testing is not warranted, as it is unlikely to reveal any diseases and would unnecessarily irritate her.

For now, focus on pain relief with Tylenol and diclofenac gel. Continue to keep her involved in physical activity.

If you have any further questions don't hesitate to contact me.
Regards,
Dr. Elkins

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