Adult Complications

General discussion regarding Kawasaki disease
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Adult Complications

Post by Kawasakilady » Tue May 15, 2018 9:10 pm

Hi Every one!

I am so glad I have found this forum! I am a 24 year old female who was diagnosed with Kawasaki Disease when I was 4.
I had the typical symptoms, fevers, skin rashes, peeling, swollen lymph nodes etc, but living in a country/rural town, it went untreated for a week or so as the doctors where at a complete loss as to what I was suffering with.I was lucky enough to be clear from any heart disease.
I have lived a reasonably normal, healthy life other the insane, migraines, well until now. For the past 3 months, I have been suffering with shortness of breath, pains in the chest, extreme fatigue.I have seen a respiratory doctor recently (like I previously mentioned, I live in a rural town, so it is a long wait to see specialists) lungs have been cleared from any problems. I am now booked in to see a cardiologist, in the coming few days. The respiratory specialist, is the first person in a number of years I have come across, that has any background knowledge of our disease/syndrome.
He has told our family, that people can suffer a after affect in there later life, even if they were cleared of any previous heart problems.

I guess the purpose of reaching out on here, is to see if any one else has had the same problems, and suffered any "after affects" when being cleared as a child.
I hope that they will be no, nasty comments from this post, I am aware 3 months is a long time to be living with the symptoms, but it is incredibly hard to get into specialist. NOTE: I have regular contact/checkup with my doctors to monitor my symptoms.

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