My son’s KD story and his symptoms

General discussion regarding Kawasaki disease
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Cici
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Joined: Fri Jan 12, 2018 2:44 pm

My son’s KD story and his symptoms

Post by Cici » Wed Jan 24, 2018 1:33 pm

My son is 16 months now. He started fever right before Christmas last year. He got rashes and dry cracked lips. He didn’t want to eat. He drank a lot of water due to his fever but he also threw up the water. We took him to his normal hospital, the first doctor suspected for strep and the test was negative. That doctor gave him Zofran to stop vomiting. The vomiting stopped but he still got all the other symptoms. Not eating and no energy. We brought him to ER. They gave him Tylenol right away. The ER doctor said it’s a tricky situation given that he is just a baby. The doctor said it’s our choice to go home or get IV treatment. We chose to give him IV plus a blood test. The doctor was not really concerned about the results, just mentioned we should do another blood test in a couple weeks because that blood test showed his red blood cells count was a little high. After his IV, we noticed he developed new rashes on his shoulder and fingers. The doctor also noticed the inflammation around his throat area and lots of bumps on the roof of his mouth. The doctor ruled out Hand Foot Mouth Disease and treated him for Croup. We went home that day. The next two days, he was not moving around and just wanted to be held and sleep. It was probably because he developed joint pain those two days and it was too painful for him to move. After we saw new symptoms of swelling hands, we brought him back to the hospital. Thank God the 3rd doctor finally suspected for KD and transferred us to Children’s Hospital ER right away. It was The New Year Day and we were admitted that day. He got IVIG that night. We were discharged on the 6th with dialation/aneurysms. He’s been on aspirin and Lovenox injection. We go back to Children’s Heart Clinic every week for Echo check. I quit my job to stay home take care of him and we don’t plan to send him back to daycare. We also don’t plan to take him to any crowd until the flu season is over. We have experienced the roller coaster mode and thank god that his results are going to the right direction.
Hope all the KD kids are going to get full recovery and hope the causes of KD are going to be uncovered very soon to stop KD happening.

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