14 years after KD concerns

General discussion regarding Kawasaki disease
Post Reply
123wolves
New Member
Posts: 3
Joined: Mon Jan 22, 2018 3:27 pm

14 years after KD concerns

Post by 123wolves » Mon Jan 22, 2018 3:39 pm

Hi there,
Im based in the UK and After some advice my daughter had KD age 5 she is now 19 she was treated at the time and I was told she would have no long term issues after. She was a competitive swimmer for 9 years training 3-4 times a week for 2 hours at a time and stopped training in June 2017 since then even though she is active but she has had very rapid weight gain going up 4 dress sizes in 5 months and her body is puffy even struggles with finding shoes to fit around her feet. It is like she has water retention. She went to the doctors who told her that if it was water retention it would be very serious and sent her for blood tests they all came back ok apart form she had low folic acid so they prescribed it for her and thats all. She is still gaining weight and now has stretch marks all over her legs, arms and stomach due to how much shes gained weight. I have looked into this and heart problems keeps popping up and the fact she had KD is worrying me but the doctor dismissed it as being any concern. does anyone have any advice or words to help put me at ease.
Thanks for Reading :)

Nancy
KD Forum Leader
Posts: 666
Joined: Mon Apr 25, 2005 6:49 am

Re: 14 years after KD concerns

Post by Nancy » Mon Jan 22, 2018 4:03 pm

hi

has she seen a cardiologist ? GP won't know enough about this.,..

nancy

123wolves
New Member
Posts: 3
Joined: Mon Jan 22, 2018 3:27 pm

Re: 14 years after KD concerns

Post by 123wolves » Mon Jan 22, 2018 4:36 pm

Hi there
She has never been under a cardiologist as we were told told a no long term effects

Nancy
KD Forum Leader
Posts: 666
Joined: Mon Apr 25, 2005 6:49 am

Re: 14 years after KD concerns

Post by Nancy » Tue Jan 23, 2018 2:25 pm

hi

is the original pediatric cardiologist who treated her still around to contact ?

If not, have her see any pediatric cardiologist for an eval

nancy

123wolves
New Member
Posts: 3
Joined: Mon Jan 22, 2018 3:27 pm

Re: 14 years after KD concerns

Post by 123wolves » Wed Jan 24, 2018 4:45 pm

Hi
She was never under anybody after we went home from hospital she had heart check up after 6 months and told she wouldn't have any long term effects, I'm going to take her back to GP and insist on seeing a heart specialist of some kind to see if there are any links as a lot of her symptoms could all be heart related :(
Charmaine

Nancy
KD Forum Leader
Posts: 666
Joined: Mon Apr 25, 2005 6:49 am

Re: 14 years after KD concerns

Post by Nancy » Wed Jan 24, 2018 9:39 pm

hi

Please do...or just make your own appointment with a cardiologist ! Needs to be evaluated :)

best wishes,
nancy

Post Reply