Arthritis/joint pain 2 years on??

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jay781
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Joined: Wed Sep 28, 2016 9:30 pm

Arthritis/joint pain 2 years on??

Post by jay781 » Wed Sep 28, 2016 9:47 pm

Hi my daughter, now 3 1/2 was diagnosed when just 17 months old with KD and treated fortunately on the 5th day. She had terrible arthritis pain for 3 months after diagnosis in her wrists, knees and ankles to the point where she could not walk or feed herself for a couple of hours after waking and was very limited in her movements which was so unusual for her as she is a child who does not sit still. She had no cardiac issues and was discharged from all follow up last year. But over the past couple of months she complains that joints hurt all over her. For the last 3 weeks she has complained that her left wrist has been hurting and I have put it down to growing pains as there were not other obvious symptoms or trauma to cause it.

That was until this morning when she woke, her wrist and hand was very swollen and warm and was guarding it. We have been to the doctor and had an x-ray which didn't show anything significant and been to have bloods as the GP is suspecting possible arthritis. Needless to say I have jumped on google and came across this site. I am looking for anyone who has had a similar experience so I am armed with info when we see our paediatrician soon. When you google KD and juvenile arthritis nothing comes up except for the initial arthritis symptoms linked to the inflammation stage of the disease. Is it possible to have residual arthritis suddenly flare up literally 2 years to the day after diagnosis???

Thanks in advance for any advice

Nancy
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Joined: Mon Apr 25, 2005 6:49 am

Re: Arthritis/joint pain 2 years on??

Post by Nancy » Thu Sep 29, 2016 2:52 pm

hi

No likely connection between a history of KD and arthritis type symptoms now. The joint pain sometimes associated with
KD is transient and does not cause joint damage.

Your daughter's physician will likely be testing her for JIA (juvenile idiopathic arthritis) as well as other diseases that
can cause joint pain and swelling.

Best of luck :)
nancy

jay781
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Joined: Wed Sep 28, 2016 9:30 pm

Re: Arthritis/joint pain 2 years on??

Post by jay781 » Fri Sep 30, 2016 5:20 am

Thanks Nancy, that info is much appreciated. Her leg/knee has started hurting this afternoon on waking from a nap and hand is still swollen. Unfortunately this weekend is a public holiday here so hopefully it doesn't take too long to get an appointment with our paediatrician
Jay

Nancy
KD Forum Leader
Posts: 647
Joined: Mon Apr 25, 2005 6:49 am

Re: Arthritis/joint pain 2 years on??

Post by Nancy » Mon Oct 03, 2016 6:56 pm

hi

Best of luck to you :) Hope you get some answers !

Nancy

KDmum
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Re: Arthritis/joint pain 2 years on??

Post by KDmum » Mon Jan 02, 2017 8:22 am

Hi,
I know you posted over 3 months ago now. Hoping you get this.
My daughter is 4 years old and post KD approx 1.5 years.
I have noticed she has had pins and needles often. Has complained about walking. Yesterday she woke up and said her legs were hurting. I have noticed there are a few parents who's child is in a similar situation post KD with joint pain. I am hoping to talk to out GP and then get a referral to a pedeatrician.
Any further news since your post in Sept?

Kbiondi
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Re: Arthritis/joint pain 2 years on??

Post by Kbiondi » Thu Jan 12, 2017 11:46 pm

Hi - My son had KD when he was 8 - he is now 13 and has an issue with his knee - he spent 10 days in hospital with severe pain in knee - he had many KD symptoms but doctors did not know enough about KD to even consider treating. We are in FL with limited healthcare experts. He did run in freshly sprayed pesticide the day before the outbreak of pain. It has been 4 months and his knee is the size of a melon - they have tested him for JIA but all test keep coming back negative....so yes i think there could be a connection...or he is having a relapse of KD. He has not been officially diagnosed with JIA. If anyone knows of a great KD specialist that we can consult - please advise - frustrated with FL doctors....no one knows what to do but keep pointing the other way....hope you find some answers too.

Charmaineheskett
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Re: Arthritis/joint pain 2 years on??

Post by Charmaineheskett » Mon Aug 28, 2017 5:47 pm

Hi I know this is a while ago now, but I am wondering if you ever got any answers for your daughter's pain? I am a 28 year old kd survivor (25.5 years ago now) and I am trying to find out if there is a possibility that my history with kd has some connection to my grade 4 arthritis in my ankle and grade 1 in my knees and other ankle! I have always had joint pain throughout my life which is now apparent why but I have heard there may be a connection as both of and arthritis are an autoimmune disorders

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