Desperate help please before ward rounds!

General discussion regarding Kawasaki disease
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Hardinga2013
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Joined: Sun Feb 11, 2018 3:58 am

Desperate help please before ward rounds!

Post by Hardinga2013 » Sun Feb 11, 2018 4:00 am

I’m hoping you can help, my daughter has been in hospital since last Monday with a constant fever above 38.at times it has reached 41.3 It was on and off since the Friday-Sunday. The doctors decided she may have atypical Kawasaki but are unsure. We are on day 10 tomorrow but they are undecided about the treatment as this evening her fever has finally broke. She hasn’t had a rash or red eyes but she has had a strawberry tongue, cracked lips full of ulcers, red hands, lots of smaller lymph nodes in neck up. Blood test wise her crp has come back to normal, her creatinine is elevated, as are her platelets and white cells a bit.
I’m really concerned they won’t treat as the fever has dropped to 36.6 and she may end up with some cardiac issues. She already has abnormal rhythms in her heart prior to this.

Please can you offer any advice

Utahmom
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Joined: Fri Feb 09, 2018 10:53 pm

Re: Desperate help please before ward rounds!

Post by Utahmom » Sun Feb 11, 2018 3:13 pm

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.

Utahmom
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Posts: 7
Joined: Fri Feb 09, 2018 10:53 pm

Re: Desperate help please before ward rounds!

Post by Utahmom » Sun Feb 11, 2018 3:14 pm

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.
We are Day 24. Fight for your child.
Get that gamma.

Utahmom
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Posts: 7
Joined: Fri Feb 09, 2018 10:53 pm

Re: Desperate help please before ward rounds!

Post by Utahmom » Sun Feb 11, 2018 3:15 pm

Was she negative for strep?
Ask the questions

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