Search found 29 matches

by sydneli
Fri Aug 20, 2010 11:18 pm
Forum: General Discussion
Topic: Heart Catheterization at age 7, 2 years after KD?
Replies: 8
Views: 2308

Re: Heart Catheterization at age 7, 2 years after KD?

I'm so glad I logged on here tonight. This has been a concern for me too. Jordan is almost 3 years post KD-he'll be 10 in a week. He had 2 rounds of IVIG and remicade, and ended up with giant aneurysms-the largest was around 10mm. They have decreased in size, and last October the cardiologist said J...
by sydneli
Mon Jan 11, 2010 4:02 pm
Forum: General Discussion
Topic: Food?
Replies: 13
Views: 1982

Re: Food?

Green veggies like Broccoli and Spinach are high in Vit K. They can decrease the effect of the Coumadin, but the nurse told us to keep the diet consistent, and have the levels checked and changed accordingly. Here's a printout from NIH about Coumadin and Vit K: http://www.cc.nih.gov/ccc/patient_educ...
by sydneli
Sat Jan 09, 2010 7:55 pm
Forum: Activities & Events
Topic: DC/Shenandoah Valley area
Replies: 10
Views: 7863

Re: DC/Shenandoah Valley area

Hi newmom, I live in Hamilton, west of Leesburg. You're lucky you got to get IVIG at Lansdowne! We had to go to Children's in DC. I agree with Kariego, please get the echo done and make sure his fever is gone for 24 hours before discharge. My son was discharged too early and had to go back a day lat...
by sydneli
Sun Aug 23, 2009 5:33 pm
Forum: Medical Articles
Topic: Medical Markers of Candida
Replies: 7
Views: 11688

Re: Medical Markers of Candida

Hmm-that's a lot of information, but timely. My husband is being treated for chronic Lyme disease, and has been developing oral thrush due to the antibiotics he is on. My son Jordan, who had KD 2 years ago this week and also has giant CAAs, complained of his tongue hurting a few weeks ago. It's also...
by sydneli
Sun Jun 21, 2009 8:12 pm
Forum: General Discussion
Topic: Beta Blockers
Replies: 16
Views: 3637

Re: Beta Blockers

My son, Jordan, had KD almost 2 years ago at age 7 and was started on beta blockers right after he was diagnosed with the giant aneurysms. He started on atenolol first, but developed terrible hives after a couple weeks. He was changed to carvedilol, and has been on it ever since. It might slow him d...
by sydneli
Sun Mar 01, 2009 7:44 pm
Forum: General Discussion
Topic: Tuberculosis
Replies: 8
Views: 2294

Re: Tuberculosis

Anemia is common in the acute stages of KD. My son was anemic and had a blood transfusion when he was hospitalized for KD. He was aged 6.

Where in Virginia do you live? We're in Loudoun County.
by sydneli
Fri Nov 21, 2008 9:59 pm
Forum: General Discussion
Topic: Angiograms
Replies: 6
Views: 1556

Re: Angiograms

Thank you all so much for your replies. Jordan's 6 month checkup is on Monday-I'll let you know how it goes. I haven't checked back here for a while and I'm just so sad about Eileen's loss of May.
by sydneli
Fri Nov 21, 2008 9:55 pm
Forum: General Discussion
Topic: To Eileen
Replies: 3
Views: 955

Re: To Eileen

I'm so very sorry for your loss. You're in my thoughts and prayers. I wish we could do more, but know that we're here for you.
by sydneli
Sat Nov 08, 2008 10:35 pm
Forum: General Discussion
Topic: Can antiobiotics hide symptoms of KD?
Replies: 4
Views: 1297

Re: Can antiobiotics hide symptoms of KD?

Hi, I agree with Charlene-every case is different. My son (age 6 when he was diagnosed) had a high fever, swollen lymph nodes and red eyes-we were leaving for the beach so took him in for a check and they thought he had an ear infection so gave him antibiotics. We left for the beach and his fever re...
by sydneli
Wed Oct 15, 2008 9:25 pm
Forum: General Discussion
Topic: Angiograms
Replies: 6
Views: 1556

Angiograms

My 8 year old son is 1 year post KD, (in August) and has a giant aneurysm which is followed up every 6 months with the cardiologist. He's scheduled for another echo in November. I was just wondering when or if your kids with aneurysms had an angiogram or exercise stress test done. Jordan's doc said ...
by sydneli
Sat Sep 20, 2008 8:28 am
Forum: KD Stories
Topic: Paige's photo from last year
Replies: 3
Views: 1492

Re: Paige's photo from last year

What a cutie!

My son (age 8-had KD last year and now has giant coronary artery aneurysm) loves to look at photos and hear about other older kids who have been through it all too. He thinks he's the only one...
by sydneli
Sat Jun 28, 2008 10:00 pm
Forum: Activities & Events
Topic: DC/Shenandoah Valley area
Replies: 10
Views: 7863

Re: DC/Shenandoah Valley area

Hi!

I'm very interested! I live in Loudoun County-my 7 year old son was diagnosed with KD last August and was at DC Children's for a week, and then another 5 days. He ended up with giant CADs. I'd love to help spread the word about KD. PM me!

Sydne
by sydneli
Mon May 05, 2008 10:08 pm
Forum: Activities & Events
Topic: INTERNATIONAL KD SYMPOSIUM in TAIWAN
Replies: 9
Views: 5439

Re: INTERNATIONAL KD SYMPOSIUM in TAIWAN

Hi,

If you go to the American Heart Assoociation site,

http://www.americanheart.org/presenter. ... er=3051323

there are links (on the right) to all the KD abstracts and highlights from the symposium. Interesting stuff!