Search found 201 matches

by Joe
Mon May 09, 2016 3:01 pm
Forum: General Discussion
Topic: Hypothesis for Kawasaki Disease in Children Due to a Temporary Local Increase in Electrostatic Potentials
Replies: 4
Views: 896

Re: Hypothesis for Kawasaki Disease in Children Due to a Temporary Local Increase in Electrostatic Potentials

EDIT: Updated first post with download link.

Nice write-up - very interesting hypothesis. I'd love to see it studied more.

That site is cumbersome to download the PDF; would you mind if I posted here?
by Joe
Mon May 02, 2016 3:50 pm
Forum: KD Stories
Topic: A 4 year old KD story with cured aneurysms
Replies: 2
Views: 1291

Re: A 4 year old KD story with cured aneurysms

Love the passion and research, but have you considered that the two months' time was the likely reason that the arteries returned to normal?

Best of luck to you and your daughter - hope she continues to heal.
by Joe
Mon Oct 19, 2015 9:42 am
Forum: General Discussion
Topic: concerned aunt
Replies: 1
Views: 759

Re: concerned aunt

Best advice - support your sister and let her know everything will be alright. Be strong. Encourage your sister to own her son's care and ask lots of questions. Push until she is satisfied with the answer.
by Joe
Tue Oct 06, 2015 10:37 am
Forum: General Discussion
Topic: Wrong Diagnosis - Medical Malpractice?
Replies: 1
Views: 860

Re: Wrong Diagnosis - Medical Malpractice?

When was this?
by Joe
Thu Jan 15, 2015 12:49 pm
Forum: General Discussion
Topic: How soon did your child receive Echo?
Replies: 10
Views: 1346

Re: How soon did your child receive Echo?

Notto17 wrote:We are taking my daughter to a children's hospital for a 2nd opinion and to receive an echo. Thanks everyone!
Time is critical. Luckily you already received IVIG. Good luck, let us know how everything goes.
by Joe
Thu Jan 15, 2015 12:47 pm
Forum: KD Stories
Topic: KAWSAKI AWARENESS PROGRAM NEED EVERYONE!!!!
Replies: 1
Views: 1000

Re: KAWSAKI AWARENESS PROGRAM NEED EVERYONE!!!!

Your enthusiasm is wonderful. Have you looked into the work already being done by numerous other organizations such as UCSD, KD Foundation, American Heart, etc? I would hate to see you start from ground zero when so much has already been accomplished.
by Joe
Tue Jan 13, 2015 5:48 pm
Forum: General Discussion
Topic: How soon did your child receive Echo?
Replies: 10
Views: 1346

Re: How soon did your child receive Echo?

Hi everyone, my daughter was recently diagnosed with KD and received treatment (via outpatient-she didn't even get admitted to hopsital!), which improved her symptoms; however, she has not yet received an echo. They want us to wait until February 3rd, which we follow up with her doctor tomorrow and...
by Joe
Sun Jan 11, 2015 12:57 pm
Forum: General Discussion
Topic: Possible KD - atypical? Thoughts please
Replies: 9
Views: 924

Re: Possible KD - atypical? Thoughts please

Hi my name is Sandra from uk. My son was diagnosed with KD 2 years ago age 6. He was misdiagnosed with Scarlet Fever. He had all the typical symptoms. Swollen red tongue, yellows coloured hands later on and the finger tips peeled, very pale with fevers going above 104. He got to day 18 befor he was...
by Joe
Tue Dec 09, 2014 1:20 pm
Forum: General Discussion
Topic: TO JOE: I'M ASKING YOU FIRST.....
Replies: 4
Views: 816

Re: TO JOE: I'M ASKING YOU FIRST.....

Danielle, Most of us here are either parents of kids who have/had KD or are KD survivors. Going through my son's KD was hands down the worst experience of my life. To answer your questions: there is still so much unknown about KD. However there is a lot of work being done and a lot of good people in...
by Joe
Tue Nov 25, 2014 8:57 am
Forum: General Discussion
Topic: Readmission Criteria to School
Replies: 4
Views: 882

Re: Readmission Criteria to School

Agree with Nancy 100%.
by Joe
Sat Jun 14, 2014 1:53 pm
Forum: KD Stories
Topic: Am I right to have KD concerns about my 2 year old?
Replies: 2
Views: 1124

Re: Am I right to have KD concerns about my 2 year old?

You should go get a second opinion immediately. I would go to the ER if you cannot get into a doctor's office. See the image at the top of this site: http://www.kdfoundation.org/ He has a fever + strawberry tongue + lymph nodes + rash. More than enough symptoms. Good luck, let us know what they say....
by Joe
Mon Jan 28, 2013 10:00 am
Forum: General Discussion
Topic: Wrote a song for my daughter who had KD
Replies: 2
Views: 486

Re: Wrote a song for my daughter who had KD

This is great. Thanks very much for sharing, Jesse.
by Joe
Fri Nov 16, 2012 8:44 am
Forum: KD Stories
Topic: 3 years post KD...
Replies: 3
Views: 1579

Re: 3 years post KD...

Don't blame yourself whatsoever - many of us do the same thing when our children get KD and we shouldn't. We don't know the cause of KD yet and awareness in the medical community is not where it needs to be. Kids grow and change and heal in ways that surprise us all. Hang in there and I hope your so...