Search found 7 matches

by Utahmom
Sat Feb 17, 2018 7:20 am
Forum: KD Stories
Topic: Long term joint pain
Replies: 17
Views: 7332

Re: Long term joint pain

We are about 30 days out. NO IVIG.
They were too late fighting over what he had.
He woke with knee to ankle pain about Day 22.
Today, he woke with swollen joints in thumb, pointer and middle man. This us absolutely not normal.
Never happened before this.
by Utahmom
Wed Feb 14, 2018 5:46 am
Forum: General Discussion
Topic: My son passed away
Replies: 6
Views: 1129

Re: My son passed away

I am so sorry for your great loss. Our little guy is 6 1/2 years old. They midiagnosed our son, so he was not able to get treatment. We are about 25 days + out from fever. We also ended up with croup yesterday. Our little guy now has some leg pain from his knee down, which is new. I will not lie, we...
by Utahmom
Sun Feb 11, 2018 3:15 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 63

Re: Desperate help please before ward rounds!

Was she negative for strep?
Ask the questions
by Utahmom
Sun Feb 11, 2018 3:14 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 63

Re: Desperate help please before ward rounds!

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.
We are Day 24. Fight for your child.
Get that gamma.
by Utahmom
Sun Feb 11, 2018 3:13 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 63

Re: Desperate help please before ward rounds!

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.
by Utahmom
Sat Feb 10, 2018 3:29 pm
Forum: General Discussion
Topic: Can you get treatment after late diagnosis
Replies: 1
Views: 144

Re: Can you get treatment after late diagnosis

Just talked to Cardiologist on Saturday no less about treating after 20 days. He stated that if we still had a fever over 100.4 and blood markers that were elevated, then they would want to treat with IVIG regardless of the day of onset. His recommendation was that since we did NOT receive IVIG trea...
by Utahmom
Sat Feb 10, 2018 12:11 pm
Forum: General Discussion
Topic: Can you get treatment after late diagnosis
Replies: 1
Views: 144

Can you get treatment after late diagnosis

Our 6 year old son is 21 days out KD. 1st Day - Started with extreme lethargy. Developed high fever, sore throat, swollen lymph nodes, red throat, swollen tonsils, white coated tongue (to start), extreme lethargy, runny nose, cough, no appetite, stomach pain, non stop vomiting. Hands felt very dry, ...