Search found 11 matches

by Utahmom
Tue May 15, 2018 10:03 pm
Forum: General Discussion
Topic: Suspected Kawasaki and now HSP ? Anyone, please
Replies: 2
Views: 497

Re: Suspected Kawasaki and now HSP ? Anyone, please

Just an update, our son does in fact have HSP.
We saw over 16 doctors, lots of blood drawn and biopsies.
He now has mild kidney involvement from the HSP but we are expected to return to normal with no blood or protein in the urine within one year, if not sooner.
by Utahmom
Tue May 15, 2018 9:59 pm
Forum: General Discussion
Topic: Rash on ankles after ivig??
Replies: 1
Views: 368

Re: Rash on ankles after ivig??

Did you find out anything about the rash?
It actually looks like the HSP that my son got after the KD.
It got worse and then had little red spots come up.

I hope your little guy is doing well.
by Utahmom
Tue May 15, 2018 9:43 pm
Forum: General Discussion
Topic: Other inflammatory issues and Kawasaki
Replies: 1
Views: 162

Re: Other inflammatory issues and Kawasaki

Our son is now 7 years old. He had KD in January of this year (2018). It was unfortunately missed. He did NOT receive IVIG, but he has had 2 Echos as would have been even had he been treated. To date they were normal. About one month to 8 weeks, our son developed a new rash of little red spots that ...
by Utahmom
Wed Feb 21, 2018 12:34 pm
Forum: General Discussion
Topic: Suspected Kawasaki and now HSP ? Anyone, please
Replies: 2
Views: 497

Suspected Kawasaki and now HSP ? Anyone, please

Our son, 6 years old, has not been officially diagnosed Kawasaki but he has a strong case per the cardiologist. 25 days later, my son has some little purple purpura dots on leg and trunk. Few days later they multiply and now are everywhere on his legs. He has pain and swelling that moves around. Whi...
by Utahmom
Sat Feb 17, 2018 7:20 am
Forum: KD Stories
Topic: Long term joint pain
Replies: 20
Views: 9829

Re: Long term joint pain

We are about 30 days out. NO IVIG.
They were too late fighting over what he had.
He woke with knee to ankle pain about Day 22.
Today, he woke with swollen joints in thumb, pointer and middle man. This us absolutely not normal.
Never happened before this.
by Utahmom
Wed Feb 14, 2018 5:46 am
Forum: General Discussion
Topic: My son passed away
Replies: 7
Views: 2589

Re: My son passed away

I am so sorry for your great loss. Our little guy is 6 1/2 years old. They midiagnosed our son, so he was not able to get treatment. We are about 25 days + out from fever. We also ended up with croup yesterday. Our little guy now has some leg pain from his knee down, which is new. I will not lie, we...
by Utahmom
Sun Feb 11, 2018 3:15 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 522

Re: Desperate help please before ward rounds!

Was she negative for strep?
Ask the questions
by Utahmom
Sun Feb 11, 2018 3:14 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 522

Re: Desperate help please before ward rounds!

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.
We are Day 24. Fight for your child.
Get that gamma.
by Utahmom
Sun Feb 11, 2018 3:13 pm
Forum: General Discussion
Topic: Desperate help please before ward rounds!
Replies: 3
Views: 522

Re: Desperate help please before ward rounds!

Get that echo now.
Fight for treatment.
We were too late. No one listened up until the 4th visit and then we were too late to get it.
by Utahmom
Sat Feb 10, 2018 3:29 pm
Forum: General Discussion
Topic: Can you get treatment after late diagnosis
Replies: 1
Views: 531

Re: Can you get treatment after late diagnosis

Just talked to Cardiologist on Saturday no less about treating after 20 days. He stated that if we still had a fever over 100.4 and blood markers that were elevated, then they would want to treat with IVIG regardless of the day of onset. His recommendation was that since we did NOT receive IVIG trea...
by Utahmom
Sat Feb 10, 2018 12:11 pm
Forum: General Discussion
Topic: Can you get treatment after late diagnosis
Replies: 1
Views: 531

Can you get treatment after late diagnosis

Our 6 year old son is 21 days out KD. 1st Day - Started with extreme lethargy. Developed high fever, sore throat, swollen lymph nodes, red throat, swollen tonsils, white coated tongue (to start), extreme lethargy, runny nose, cough, no appetite, stomach pain, non stop vomiting. Hands felt very dry, ...