Search found 15 matches

by Cici
Wed Jun 27, 2018 3:26 pm
Forum: General Discussion
Topic: Recurrence of the disease - how frequent is this?
Replies: 8
Views: 8988

Re: Recurrence of the disease - how frequent is this?

Thanks so much for sharing, Apollo.
I’m so glad that your son got his treatment during the ten day window. That doctor who refused to take KD off the table is just amazing and priceless.
Raising KD awareness is so crucial and I’m committed to do so.
by Cici
Thu Jun 21, 2018 3:33 pm
Forum: General Discussion
Topic: Regression: Plavix or not - A second opinion from Mayo Clinic
Replies: 2
Views: 459

Re: Regression: Plavix or not - A second opinion from Mayo Clinic

Hi Ricardo,

My son had two moderate to large aneurysms. He was on baby aspirin and Lovenox for two months. His two aneurysms regressed to normal over the two months. He’s on baby aspirin now.

Thanks,
Cici
by Cici
Mon Apr 09, 2018 12:41 pm
Forum: General Discussion
Topic: Untreated Kawasaki Disease/Adult Health Related Complications
Replies: 9
Views: 685

Re: Untreated Kawasaki Disease/Adult Health Related Complications

KCLP, Thanks so much for sharing your insights. It’s the best reply I’ve read so far. “Keeping an open mind and engaging in open discussion about the cause/treatment/long-term management of Kawasaki Disease until scientific research provides conclusive evidence, unlocking the mysteries of Kawasaki D...
by Cici
Sat Apr 07, 2018 10:16 pm
Forum: General Discussion
Topic: Does this sound like Kawasaki Disease Drs won’t take me seriously
Replies: 4
Views: 486

Re: Does this sound like Kawasaki Disease Drs won’t take me seriously

Hi I’m sorry to hear your experiences with those doctors and I completely feel your frustration. I urge you go to a Children’s Heart Clinic or find a pediatric cardiologist for your son and request an Echo. In the meantime, request your son’s pediatrician to order a blood test to check for white-cel...
by Cici
Fri Apr 06, 2018 12:55 pm
Forum: General Discussion
Topic: KD and Shiitake mushroom
Replies: 1
Views: 293

Re: KD and Shiitake mushroom

Hi I’m Chinese and my husband is American. We live in the US. My son got KD right before last Christmas. We didn’t expose to Shiitake mushrooms or eat Shiitake mushrooms. I’m more concerned about the carpet shampoo theory. Actually mushrooms are considered as one of the anti inflammatory foods and a...
by Cici
Sat Mar 10, 2018 3:51 pm
Forum: General Discussion
Topic: Regression: Plavix or not - A second opinion from Mayo Clinic
Replies: 2
Views: 459

Regression: Plavix or not - A second opinion from Mayo Clinic

Hi everyone! Please forgive my language issues given that English is not my native language. My son got KD when he was 15 months old. I found this KD Forum and I posted my son’s story and his symptoms. I also posted his 6 weeks post KD update - off Lovenox and adding Plavix. After he showed some sid...
by Cici
Wed Mar 07, 2018 11:21 pm
Forum: General Discussion
Topic: Going back to school
Replies: 2
Views: 419

Re: Going back to school

As a mom, I recommend let her stay home for 6 or 8 weeks, at least until the flu season is over. To minimize the possibility of catching any sickness is best for her recovery. There is a post regarding “how quickly can a child return to daycare post KD” with a lot of comments, you can search for it ...
by Cici
Tue Mar 06, 2018 7:28 pm
Forum: KD Stories
Topic: i,m afraid...
Replies: 4
Views: 1371

Re: i,m afraid...

Hi momcat...my son was diagnosed with kd 2 weeks ago and 1 of his coronary artery dilated at 2.97mm.im just very worried if it will regress over time..have you come across anyone who has similar situation with my son..hes 15 months and cheerful and active..looking for some inspirations!!!! Hello Fa...
by Cici
Tue Mar 06, 2018 7:21 pm
Forum: KD Stories
Topic: Regression!
Replies: 6
Views: 2619

Re: Regression!

Hi Ekorkofigas! I sent an email to you on Feb 24th via my KD Forum account. Hope you received my email and looking forward to connecting with you.
by Cici
Tue Mar 06, 2018 6:27 pm
Forum: General Discussion
Topic: Does this sound like Kawasaki Disease Drs won’t take me seriously
Replies: 4
Views: 486

Re: Does this sound like Kawasaki Disease Drs won’t take me seriously

KD is serious and I’m surprised why the two doctors didn’t take it seriously... I recommend that you ask for a blood test plus an Echo. Be strong and protect your kid. Trust your instincts.
by Cici
Sun Feb 25, 2018 8:28 pm
Forum: General Discussion
Topic: Regression: Plavix or not - trust that mommy instinct
Replies: 0
Views: 349

Regression: Plavix or not - trust that mommy instinct

My son got KD when he was 15 months old. We started IVIG on Jan 1st and discharged on Jan 6th. He had two moderate to large aneurysms. He was on low dose aspirin plus Lovenox twice daily. We went back for an echo weekly for 6 weeks. Over those 6 weeks, the results showed regression every other week....
by Cici
Sat Feb 03, 2018 1:32 pm
Forum: KD Stories
Topic: KD or not?
Replies: 2
Views: 831

Re: KD or not?

Reading your story just reminded me of my son’s symptoms. My son is 16 months now. He started fever right before Christmas last year. He got rashes and dry cracked lips. He didn’t want to eat. He drank a lot of water due to his fever but he also threw up the water. We took him to his normal hospital...
by Cici
Sat Feb 03, 2018 9:54 am
Forum: KD Stories
Topic: Possible KD? Please help
Replies: 1
Views: 331

Re: Possible KD? Please help

Is he in Children’s Hospital now? If not, I highly recommend a deeper diagnosis including Echo at Children’s Hospital. The best timing for IVIG treatment is between Day 5 to Day 10. Good luck!
by Cici
Wed Jan 24, 2018 2:15 pm
Forum: General Discussion
Topic: IN NEED OF HELP/ADVICE!
Replies: 7
Views: 1061

Re: IN NEED OF HELP/ADVICE!

Hi My son had rash over his upper body first and a couple days later he developed new rash on all his fingers. Then his fingers started to swell. We transferred to Children’s Hospital and finally got diagnosed for KD. He had fever for over a week, cracked lips and he didn’t move or walk for two days...
by Cici
Wed Jan 24, 2018 1:33 pm
Forum: General Discussion
Topic: My son’s KD story and his symptoms
Replies: 0
Views: 491

My son’s KD story and his symptoms

My son is 16 months now. He started fever right before Christmas last year. He got rashes and dry cracked lips. He didn’t want to eat. He drank a lot of water due to his fever but he also threw up the water. We took him to his normal hospital, the first doctor suspected for strep and the test was ne...