Search found 36 matches

by juleeannk
Mon Jun 02, 2008 3:04 pm
Forum: General Discussion
Topic: Advice on joint pain after KD
Replies: 6
Views: 1938

Re: Advice on joint pain after KD

That's a great idea about the journal! I will hunt for a Rhuematologist and see what they say. Thanks.
by juleeannk
Sat May 24, 2008 7:17 pm
Forum: General Discussion
Topic: Advice on joint pain after KD
Replies: 6
Views: 1938

Advice on joint pain after KD

I was wondering if anyone else has experienced anything like this. My son was diagnosed and treated for KD right before his 2 birthday. He has no heart damage but he has other problems. Two weeks after coming home from the hospital he got a horrible itchy rash. After many creams, and medicines and d...
by juleeannk
Thu Sep 06, 2007 8:48 pm
Forum: General Discussion
Topic: Tyler had his last echo
Replies: 0
Views: 826

Tyler had his last echo

Tyler went in for his 6 month echo and they didn't even have to sedate him. He was such a champ! They put on Finding Nemo, he held my hand and let them do the entire thing. They said he's the first two year old they didn't have to sedate. Anyways they said his heart is perfect and that we don't have...
by juleeannk
Thu Aug 23, 2007 1:56 pm
Forum: General Discussion
Topic: On the wings of love by Donna Rhodes Collins
Replies: 3
Views: 890

Re: On the wings of love by Donna Rhodes Collins

Thanks, I wanted to wait until we were further along with the whole KD thing before I read it so that's why I waited. Tyler is great, no effects and goes for his 6 month echo on Tuesday but I am very hopeful that it will be negative.
by juleeannk
Wed Aug 22, 2007 4:08 pm
Forum: General Discussion
Topic: On the wings of love by Donna Rhodes Collins
Replies: 3
Views: 890

On the wings of love by Donna Rhodes Collins

Has anyone read this book yet? I ordered it today. It's a grandmother writing about her grandson who she lost to KD. I just wanted to know if it was a good book or not. Thanks.
by juleeannk
Thu Jun 07, 2007 1:57 pm
Forum: KD Stories
Topic: Jack's Story rug/upholstery cleaning
Replies: 12
Views: 3942

We did not have our carpets cleaned and no one in my family did either. We all have hardwood floors and I use non toxic cleaners. Tyler stays at home with me and is in no daycare settings. He was not anywhere near carpets or cleaning agents for that matter prior to getting KD. It's just so frustruat...
by juleeannk
Sat May 05, 2007 8:54 am
Forum: General Discussion
Topic: Behavior after Kawasaki
Replies: 21
Views: 6242

I can't help you on the hair smell but the crankiness we did experience and it went on for a long time. He is just now getting back to his old self again. It's been 3 and a half months since he was diagnosed with KD. I think it is very noraml for KD children to be easily irritated.
by juleeannk
Wed May 02, 2007 12:43 pm
Forum: General Discussion
Topic: Ok, so how do you get over the paranoid feelings
Replies: 4
Views: 1484

Ok, so how do you get over the paranoid feelings

We are 3.5 months post KD and I still have intense paranoia. Am I the only one? One day will be just fine and I forget about it and then the next minute bam something makes me think about it. My 5 month old has peeling of his feet only with no other symptoms but it still scares me. I have no idea wh...
by juleeannk
Tue Apr 24, 2007 1:50 pm
Forum: General Discussion
Topic: a lost battle, corey's passing
Replies: 103
Views: 21550

Debbie, my heart aches for you and your family. I am crying for you. I hope each day gets easier for you. I cannot imagine what you must be going through. My thoughts and prayers are with you and your family.
by juleeannk
Wed Apr 04, 2007 11:22 am
Forum: General Discussion
Topic: always sick.......
Replies: 12
Views: 3034

I know my son was never sick before KD and now has been sick ever since he had it. I don't know if it's related but I tend to think it is. Especially since he has had Eczema rashes which is an auto immune respose to the skin. He recently had rotavirus but I don't think that had anything to do with h...
by juleeannk
Mon Mar 19, 2007 11:17 am
Forum: General Discussion
Topic: A Fustrated parent
Replies: 9
Views: 2759

Yes I will reply, my son was dx in January and came down with this rash about 3 weeks later. It came in stages. At first it was like cottage cheese under the skin, itched immensly from the beginning and started mainly on his upper thighs. I took him to his pediatrician and he said it was just an all...
by juleeannk
Mon Mar 19, 2007 10:59 am
Forum: General Discussion
Topic: Chicago April Event?
Replies: 5
Views: 1853

I would love to go but we do not have the money to get there or to attend.
by juleeannk
Thu Mar 15, 2007 3:20 pm
Forum: General Discussion
Topic: Sent an e-mail to montel williams show
Replies: 6
Views: 1954

I sent one as well but I doubt anyone will contact me. I cannot say I didn't try though, that's why I keep doing it.
by juleeannk
Sun Mar 11, 2007 1:23 pm
Forum: General Discussion
Topic: rash/swollen red feet/2nd treatment?
Replies: 22
Views: 4567

I also think that Tyler never had Scarlet fever and our cardiologist also said that as well. He told us that everyone can have strep in their body but not be sick so that's why he could of had a positive reading. The rash was extremely itchy and that is why I know it was not a scarletina rash. I als...
by juleeannk
Fri Mar 09, 2007 8:54 am
Forum: General Discussion
Topic: rash/swollen red feet/2nd treatment?
Replies: 22
Views: 4567

[quote][i]Originally posted by Mom2John[/i] I changed John's pediatrician because of their lack of caring and help. Juleeannk, have you tried Eucerin Creme? It is the ONLY lotion that helped John's skin when the rash was still red and hot. I don't think I've seen it mentioned before. That and the Eu...