Search found 14 matches

by atulp
Thu Nov 12, 2015 8:30 pm
Forum: KD Stories
Topic: Asian grandson, 4 years old possible atypical KD. Q!!
Replies: 1
Views: 1526

Re: Asian grandson, 4 years old possible atypical KD. Q!!

The window to get the ivig treatment is typically by the tenth day of the high fever, so if the doctors think your grandson could have kd you should push for ivig immediately! I would think in most cases an echo is done before the ivig is administered though. Unfortunately a lot of cases of kd go mi...
by atulp
Fri Oct 30, 2015 7:55 am
Forum: General Discussion
Topic: Anyone had peeling skin as first symptom?
Replies: 13
Views: 3255

Re: Anyone had peeling skin as first symptom?

I'm so glad the doctors took your concerns seriously and your son is finally getting the proper diagnosis and treatment. He's very lucky to have such a loving mother and father who continued to fight or him! Best of luck to him and your entire family.
by atulp
Thu Oct 29, 2015 8:03 am
Forum: General Discussion
Topic: Anyone had peeling skin as first symptom?
Replies: 13
Views: 3255

Re: Anyone had peeling skin as first symptom?

No need to thank anyone, nothing is scarier than having a child who is sick and worse yet when you and/or the doctors don't know really what's wrong. If you are able to and haven't already, take some pictures of any symptoms your son still has. A lot of pediatricians never see cases of kd so even at...
by atulp
Wed Oct 28, 2015 10:07 am
Forum: General Discussion
Topic: Anyone had peeling skin as first symptom?
Replies: 13
Views: 3255

Re: Anyone had peeling skin as first symptom?

I'm so glad to hear your son is doing and feeling better,that's great news!! However, I still think you should go with your intuition and even if just for peace of mind, get your son checked out by a cardiologist. All of the symptoms of kd do go away on their own even without the dose of ivig, the l...
by atulp
Tue Oct 27, 2015 1:46 pm
Forum: General Discussion
Topic: Anyone had peeling skin as first symptom?
Replies: 13
Views: 3255

Re: Anyone had peeling skin as first symptom?

Im so sorry to hear your son is sick and that you feel like the nurses and doctors aren't listening to you. I'm not a doctor but my daughter was diagnosed with atypical kawasaki's last year, which means she didn't have all the usual symptoms that they usually look for to diagnos as kd. We were reall...
by atulp
Sat Oct 03, 2015 9:55 am
Forum: General Discussion
Topic: New diagnosis
Replies: 2
Views: 1725

Re: New diagnosis

So sorry to hear about your little girl having kd so young. My daughter was diagnosed at 15 months and I know how much more difficult and scary it seems when they are unable to communicate. Regarding ivig, from my knowledge as long as your daughter doesn't get another fever after the first dose (I f...
by atulp
Thu Jan 01, 2015 3:43 pm
Forum: General Discussion
Topic: Asprin trouble
Replies: 2
Views: 898

Re: Asprin trouble

My daughter was 14 months old when she was diagnosed with KD and we crushed the aspirin and mixed it with yogurt for her. We would spoon some yogurt into a dish with the crushed aspirin so we could make sure she took all the aspirin first and then would give her the rest of the yogurt if she wanted ...
by atulp
Fri Dec 26, 2014 2:58 pm
Forum: General Discussion
Topic: Possible KD - atypical? Thoughts please
Replies: 9
Views: 1634

Re: Possible KD - atypical? Thoughts please

Hi, I'm so sorry to hear about your daughter being sick. I've replied a few times to other parents who were unsure if their child had KD. My daughter was diagnosed with atypical kawasaki disease back in September. It's a hard diagnosis bc there isn't a test but she didn't have all the classic signs ...
by atulp
Sun Dec 07, 2014 8:37 pm
Forum: KD Stories
Topic: THE NIGHTMARE WE SHARE
Replies: 2
Views: 1342

Re: THE NIGHTMARE WE SHARE

Sorry, I realized on point #2 above I forgot to post the link regarding the research.
http://www.kdfoundation.org
by atulp
Sun Dec 07, 2014 4:14 pm
Forum: KD Stories
Topic: THE NIGHTMARE WE SHARE
Replies: 2
Views: 1342

Re: THE NIGHTMARE WE SHARE

Hi Danielle. I'm sorry to hear about what you and your daughter have been going through. My 15 month old daughter was diagnosed with atypical kawasaki disease back in September and it was the scariest time of our lives. Like you mentioned, to have our children in so much pain and discomfort, to then...
by atulp
Sat Nov 29, 2014 1:37 pm
Forum: General Discussion
Topic: possible kawasaki what next
Replies: 4
Views: 1315

Re: possible kawasaki what next

I'm so sorry to hear your daughter is sick, seeing our little ones in such pain and discomfort is heart breaking. My daughter was diagnosed with atypical kawasaki disease in September. I'm not a doctor but we talked to so many during her hospital stay and reading up on kd, I really don't think a doc...
by atulp
Sat Nov 01, 2014 8:33 pm
Forum: General Discussion
Topic: Possible Atypical Kawasaki but no diagnosis...
Replies: 1
Views: 1034

Re: Possible Atypical Kawasaki but no diagnosis...

Hi, I'm so sorry to hear about your daughter and the anxiety of not knowing what's wrong. My 16 month old daughter was diagnosed with atypical kawasaki disease 6 weeks ago. We were in a similar situation however ended up at a pediatric er on day three of her fever because she was refusing to drink a...
by atulp
Fri Oct 31, 2014 1:04 pm
Forum: General Discussion
Topic: Possible Kawasakis....
Replies: 2
Views: 1334

Re: Possible Kawasakis....

So sorry to hear about your son's ordeal. I'm not sure if at this point it's too late for ivig and sounds like your son may be fine. But, I do just want to let you know that you don't need all symptoms to have kawasaki disease. My daughter was diagnosed with atypical kawasaki for that exact reason, ...
by atulp
Fri Oct 31, 2014 12:44 pm
Forum: General Discussion
Topic: Atypical Kawasaki
Replies: 2
Views: 1219

Re: Atypical Kawasaki

Please go to a pediatric er immediately and get ivig. My daughter was diagnosed with atypical kawasaki disease 6 weeks ago and received ivig on day 5 of her fever. She ended up getting a second dose after spiking another fever but showed so much improvement after the first treatment. Atypical kawasa...