Search found 209 matches

by mmiritello
Wed Apr 28, 2010 3:24 pm
Forum: General Discussion
Topic: Immune System Problems after KD
Replies: 16
Views: 5742

Re: Immune System Problems after KD

I brielfy looked over all the posts here. My daughter had KD when she was 7 mon and is now 4. She too has allergies that require an epipen if need be. We hooked up with an immunologist/allergist who was in with Children Memorial hospital in Chicago. Addyson , you can ask around here was always sick ...
by mmiritello
Fri Apr 09, 2010 8:17 pm
Forum: General Discussion
Topic: donations
Replies: 0
Views: 712

donations

Does anyone know who to contact for doantions. Joe I was wondering if you had an idea. I am running the rock and roll chicago 1/2 marathon and would like to raise money for KD but would need to set up a web page to do it, if anyone had any suggestions, please let me know.
by mmiritello
Mon Jan 11, 2010 2:52 pm
Forum: General Discussion
Topic: Racing heart
Replies: 2
Views: 741

Racing heart

Hi everyone, Addyson is going for her annual cario. check up feb 4th. I hate this check up, it always makes me nervous. Last year off and on her heart would race and we thought about putting her on a monitor but decided against it because she was just 3. The other day she was sitting with me ans I n...
by mmiritello
Thu Dec 17, 2009 9:12 pm
Forum: KD Stories
Topic: In need of help!!
Replies: 3
Views: 1101

Re: In need of help!!

Sorry to hear about your niece, you are right, there is no test for KD. Has any blood work been done? How about an Echo. Elevated SED rates along with other high numbers (can't think of what else) is something that they look for in KD. Is she at a childrens hospital and where are you guys located? T...
by mmiritello
Sat Dec 05, 2009 3:21 pm
Forum: General Discussion
Topic: H1N1 and Stress Test
Replies: 3
Views: 960

Re: H1N1 and Stress Test

Hey Sandy, So nice to hear that things are going good for you and Paige. Nice timing to get into you rnew house right before the holidays huh=) It's always exciting to move into a new house, stressful maybe but always fun. Things are okay here Addyson is now fighting a cold that my husband has but h...
by mmiritello
Sat Nov 28, 2009 9:31 am
Forum: KD Stories
Topic: HELP! My son has some symptoms, I am worried!
Replies: 10
Views: 4226

Re: HELP! My son has some symptoms, I am worried!

Hi, Any chance you live near a childrens hospital. From what you have said it's possible that he has Kd. I am not an expert (far from it) but a mom of a kd kid. An echo would show and heart involvement and you could ask for one but I'd reccomend that you also get blood work done for Crps and a sed r...
by mmiritello
Tue Nov 10, 2009 3:39 pm
Forum: General Discussion
Topic: Did your child get KD and had no vaccinations?
Replies: 33
Views: 6111

Re: Did your child get KD and had no vaccinations?

Hey Sandy, This is pretty interesting that there has been no one who has had KD and didn't have vaccines. Hope all is well with you guys. Take care
Michele
by mmiritello
Tue Sep 29, 2009 10:52 am
Forum: KD Stories
Topic: Bobby's atypical case at 3 months old
Replies: 105
Views: 36297

Re: Bobby's atypical case at 3 months old

Hi Charlene, Sounds like you have been busy. Bobby is amazing, Addyson would have been running out the door after the first stick. Tell him we are all proud of him. It's so carzy to think how many time these kids have been stuck and have gone to different doctors at such a young age. I think about A...
by mmiritello
Mon Sep 21, 2009 7:18 pm
Forum: KD Stories
Topic: KD and late talking
Replies: 19
Views: 5112

Re: KD and late talking

Where do you live? Have you thought about early intervention for speech? We are in IL and two of my kids had early intervention and based on your income depends on what you pay per session. Just a thought if you hadn't already gotten your son into speech and were interested. I know with kids it's li...
by mmiritello
Sun Sep 20, 2009 12:40 pm
Forum: KD Stories
Topic: KD and late talking
Replies: 19
Views: 5112

Re: KD and late talking

My daughter also had KD when she was 6months old and had delayed speech. She is 3 1/2 now and fine. I don't think her being speech dealyed had much to do with KD but who knows. Our speech therapist said that she may have been delayed beacuse she had no reason to speak because everyone else did it fo...
by mmiritello
Thu Sep 17, 2009 8:26 pm
Forum: KD Stories
Topic: Up date on Addyson
Replies: 7
Views: 2127

Re: Up date on Addyson

Glad to hear that Gregory is doing well. Why is it that kids still peel after KD, Addyson does every month just where she peeled when she had KD right on her feet and now that she notices it it drives her crazy!. In fact last week I caught her trying to use her teeth to peel it off and when I starte...
by mmiritello
Thu Sep 17, 2009 2:02 pm
Forum: KD Stories
Topic: Up date on Addyson
Replies: 7
Views: 2127

Re: Up date on Addyson

Hey Beth, how are you? Hope things are okay with you guys. Let me know. Autoimmune connection is interesting huh???
by mmiritello
Thu Sep 17, 2009 9:32 am
Forum: KD Stories
Topic: Up date on Addyson
Replies: 7
Views: 2127

Up date on Addyson

Hi everyone, sorry it's been a long time since I have posted but things are super busy around here. Just wanted to give you an update, Addyson recieved her pneumovax vaccine last Thursday and of course had some side effects but time will tell if this has made a difference. She is also now on prevent...
by mmiritello
Tue Aug 18, 2009 4:13 pm
Forum: General Discussion
Topic: carpet cleaning
Replies: 17
Views: 5955

Re: carpet cleaning

I wish I could agree with you that it isn't caused AT ALL by carpet cleaning but I think that some chemical release could be the cause. I only say this because my daughter (our 3rd child) was 7months old and we had our carpets cleaned a week before she became ill with KD. Everyone has different idea...
by mmiritello
Tue Aug 18, 2009 4:10 pm
Forum: General Discussion
Topic: High School Heart Screening Program
Replies: 14
Views: 2487

Re: High School Heart Screening Program

I live south of Chicago and was wondering how to find out if or where near us this may take place. My kids are younger but it is something that i would like to look into.
Michele (addyson's mom)