Search found 43 matches

by Littlebean
Fri May 24, 2019 2:47 am
Forum: General Discussion
Topic: LIFELONG FOLLOW-UP CARE FOR ALL
Replies: 20
Views: 12261

Re: LIFELONG FOLLOW-UP CARE FOR ALL

Yes...I have. My son was a agile and active and that at age 7 he suddenly bloated. I admit he is fond of eating but we done make fried stuff at home and fast food is very limited. How at age 9 he is close to a 100lb and has trouble with sports at school. currently we are doing a cleansweep of the ki...
by Littlebean
Fri May 24, 2019 2:42 am
Forum: General Discussion
Topic: 14 years after KD concerns
Replies: 6
Views: 3283

Re: 14 years after KD concerns

Any...what was the update regarding the weight gain and water retention?
by Littlebean
Fri May 24, 2019 2:38 am
Forum: General Discussion
Topic: Lifetime Aspirin?
Replies: 0
Views: 1464

Lifetime Aspirin?

hi, Since KD research is on going and guideline are updated.....I want to know how may of you have kids who have been taken off aspirin? My child had a aneurysm at 2year that has regressed complete within 2 years but is still on his 81mg aspirin at age 9. i hate to think what aspirin is doing to his...
by Littlebean
Fri May 24, 2019 2:35 am
Forum: General Discussion
Topic: Rate Independent CT Scan? Heard of it?
Replies: 3
Views: 2933

Re: Rate Independent CT Scan? Heard of it?

Bumping this post again.
Anybody?
by Littlebean
Mon Jul 31, 2017 7:53 am
Forum: General Discussion
Topic: ANY RESOLUTION TO STOMACH ISSUES?
Replies: 0
Views: 2633

ANY RESOLUTION TO STOMACH ISSUES?

Hi, Among so many complain post KD, low immunity and stomach issues seem to be VERY common. Has any parent or doctor come to some solution or conclusion or are we parents just banging our heads against a wall? KD is basically vasculitis so the chances are that its effected the stomach as well? im si...
by Littlebean
Wed Jul 19, 2017 10:52 am
Forum: General Discussion
Topic: Rate Independent CT Scan? Heard of it?
Replies: 3
Views: 2933

Re: Rate Independent CT Scan? Heard of it?

BUMP

Moms please help. Do any of you have kids whose arteries are now reading normal in size? or those who have stopped aspirin after long term use?
my son is having stomach issues and his doc thinks they are aspirin related.
by Littlebean
Mon Jun 19, 2017 1:51 pm
Forum: General Discussion
Topic: Rate Independent CT Scan? Heard of it?
Replies: 3
Views: 2933

Rate Independent CT Scan? Heard of it?

Hello, Back after a very long time. Some family health issues and some eagerness to look past KD. My question is has anybody heard of a Rate Independent CT Scan? My son's cardiologist wants to take him off aspirin after 2 normal echos but wants a CT Scan before he does as per some new regulations. P...
by Littlebean
Sun Oct 12, 2014 4:45 am
Forum: General Discussion
Topic: Ongoing symptoms
Replies: 1
Views: 2126

Re: Ongoing symptoms

Hello, I just came across your post looking for an answer. My son had KD 2.5 yrs ago. A month back I started noticing his stools were blood streaked. Its not constipation, the cardiologist doesn't think its aspirin. The ped has treated him with antibiotics for dysentery twice...its still there. When...
by Littlebean
Sun Oct 05, 2014 4:50 am
Forum: General Discussion
Topic: Blood in Stool
Replies: 1
Views: 2544

Blood in Stool

Hello Moms and dads! My son had atypical KD in April 2012. He has been on a low dose 81mg aspirin dose daily. Recently 3 weeks back i noticed some blood in his stool. The stool test showed no RBC or blood traces but that was a small sample. I know its blood because his stool is streaked and it was s...
by Littlebean
Tue Apr 22, 2014 6:08 am
Forum: General Discussion
Topic: Vomiting with high dose aspirin?
Replies: 4
Views: 3980

Re: Vomiting with high dose aspirin?

So glad to hear that! May the little ones stay safe and healthy!
by Littlebean
Tue Mar 25, 2014 12:54 pm
Forum: General Discussion
Topic: kD and atrovent
Replies: 0
Views: 1960

kD and atrovent

Hi, My son is 2 years post Kd and on low dose aspirin. After some regular bouts of virals and cough with chest infections dis doctor has prescribed Zyrtec (cetirizine, an antihistamine ) and chewable montelukast sodium (singular) for 3 month keeping in view the high allergy family history and the po...
by Littlebean
Tue Mar 25, 2014 12:42 pm
Forum: General Discussion
Topic: Vomiting with high dose aspirin?
Replies: 4
Views: 3980

Re: Vomiting with high dose aspirin?

Oh - the LFT result did confirm the overdose and he was switched over to Plavix (Clopidogrel) after consulting with his cardiologist here and Dr. Jane Burns.
by Littlebean
Tue Mar 25, 2014 12:39 pm
Forum: General Discussion
Topic: Vomiting with high dose aspirin?
Replies: 4
Views: 3980

Re: Vomiting with high dose aspirin?

Hi, My son suffered for KD in 2012 and was discharged after IVIG with high dose aspirin .(100mg/kg I think) Two day later he starting throwing up. At first I thought he's developed a sudden allergy to milk. He was constantly hungry and would gulp down milk and soup and then throw it all up. There wa...
by Littlebean
Wed Feb 05, 2014 6:01 am
Forum: General Discussion
Topic: immune system after KD
Replies: 5
Views: 5136

Re: immune system after KD

Awww! Same here! Doctors tell me I overthink and over analyse!
( is that even fair to say to a Kd mom?)
Have any of you discussed solution to improve immunity?
by Littlebean
Wed Feb 05, 2014 5:57 am
Forum: General Discussion
Topic: Immune System Issues?
Replies: 7
Views: 5154

Re: Immune System Issues?

Hi,
Yes I have noticed low immunity!
I'm actually researching kefir milk to built up his resistance!
Do let us know what follows...