Search found 458 matches

by Nancy
Sat Sep 15, 2018 10:19 pm
Forum: General Discussion
Topic: Lymph nodes swollen
Replies: 3
Views: 381

Re: Lymph nodes swollen

hi

what does his pediatric cardiologist think ?

Nancy
by Nancy
Mon Aug 20, 2018 10:31 am
Forum: General Discussion
Topic: Stress after KD
Replies: 2
Views: 142

Re: Stress after KD

Hi My son's pediatric cardiologist had very helpful "words of wisdom" that helped me :) When the acute phase was over, he told me to relax and let him do anything and everything he wanted to in terms of physical activity (He was 7 yrs old). He said the children whose parents don't recover along with...
by Nancy
Tue Jul 31, 2018 3:02 pm
Forum: General Discussion
Topic: Peeling skin caused by IVIG or KD?
Replies: 4
Views: 271

Re: Peeling skin caused by IVIG or KD?

hi

Since the cause of KD remains unknown...there is no absolute test to say any child does or doesn't have KD

The only "proof" is in a child who shows coronary artery aneurysms on echocardiogram.

Better to treat "borderline" KD than to have cardiac issues a few weeks later !

best
Nancy
by Nancy
Mon Jul 30, 2018 10:44 am
Forum: General Discussion
Topic: Peeling skin caused by IVIG or KD?
Replies: 4
Views: 271

Re: Peeling skin caused by IVIG or KD?

hi

Peeling skin is a sign of recovery...with or without IVIG treatment

best
Nancy
by Nancy
Fri Jul 13, 2018 3:40 pm
Forum: General Discussion
Topic: Concerned Dad needs Help/Advice
Replies: 1
Views: 195

Re: Concerned Dad needs Help/Advice

hi It is normal parental behavior to look for anything we might have done to cause our child's illness :) However, please don't blame yourself for your child developing KD ! The best KD researchers discarded the "carpet" theory of KD years ago. It was all based on one study in The Lancet way back in...
by Nancy
Thu Jul 05, 2018 8:50 pm
Forum: General Discussion
Topic: Cocksackie virus and Kawasaki
Replies: 5
Views: 284

Re: Cocksackie virus and Kawasaki

hi Sorry, I didn't realize your child already had 2 echocardiograms. I doubt you will get another one :) Even with definite KD, it is 1st echo at time of diagnosis, 2nd in 2 weeks from diagnosis and 3rd in 8 weeks from diagnosis. Not at 4 weeks unless significant changes on 1st or 2nd ones. And rheu...
by Nancy
Thu Jul 05, 2018 7:00 pm
Forum: General Discussion
Topic: Cocksackie virus and Kawasaki
Replies: 5
Views: 284

Re: Cocksackie virus and Kawasaki

hi Kawasaki Disease is an acute illness, children will recover with or without IVIG treatment. the difference between children treated with IVIG and children not treated is the increased risk of coronary artery aneurysms in children who do not receive IVIG. So, feeling good is not necessarily a sign...
by Nancy
Wed Jul 04, 2018 12:00 pm
Forum: General Discussion
Topic: Cocksackie virus and Kawasaki
Replies: 5
Views: 284

Re: Cocksackie virus and Kawasaki

hi

That's a complicated question...no one here is a medical professional :)

I would make an appointment with a pediatric cardiologist ASAP for answers

best,
Nancy
by Nancy
Mon Jul 02, 2018 12:32 pm
Forum: General Discussion
Topic: Post IVIG Effects
Replies: 2
Views: 218

Re: Post IVIG Effects

hi It's very hard for little ones who can't talk :) The hospital experience and feeling so sick is very unsettling for all children. She is probably a bit scared at night...have you tried co-sleeping to reassure her ? Even my son who was 7yrs old when he had KD returned to our bed for a month while ...
by Nancy
Thu May 10, 2018 5:30 pm
Forum: KD Stories
Topic: 26 years later and I can still call myself a survivor.
Replies: 11
Views: 9666

Re: 26 years later and I can still call myself a survivor.

hi

at your age, you should still be seeing your pediatric cardiologist every few years

best,
Nancy
by Nancy
Tue Apr 17, 2018 7:24 pm
Forum: General Discussion
Topic: IVIG and Vaccination
Replies: 2
Views: 431

Re: IVIG and Vaccination

hi

Only live vaccines have to be deferred for 11 months...all other vaccines should be given on schedule.

Source: cdc.gov
https://wwwnc.cdc.gov/travel/yellowbook ... rophylaxis

best
Nancy
by Nancy
Fri Apr 06, 2018 11:36 am
Forum: General Discussion
Topic: Untreated Kawasaki Disease/Adult Health Related Complications
Replies: 9
Views: 1039

Re: Untreated Kawasaki Disease/Adult Health Related Complications

hi

Sorry if my reply was confusing. The Kawasaki Disease Foundation, kdfoundation.org, is very clear that
Kawasaki Disease is not an autoimmune disease.

best,
Nancy
by Nancy
Thu Apr 05, 2018 9:05 pm
Forum: General Discussion
Topic: Untreated Kawasaki Disease/Adult Health Related Complications
Replies: 9
Views: 1039

Re: Untreated Kawasaki Disease/Adult Health Related Complications

hi

good luck to you in your search for answers !

However, Kawasaki Disease is not an autoimmune disease. It is an acute illness that begins and ends with or
without treatment.

best,
Nancy
by Nancy
Wed Mar 28, 2018 2:20 pm
Forum: Medical Articles
Topic: KD symptoms after treatment
Replies: 3
Views: 977

Re: KD symptoms after treatment

hi
The red eyes, especially at the end of the day, are very normal and do not mean continued inflammation or
any other problems :)

It is considered to be a form of photophobia and will likely be the last thing to resolve, my son's lasted
for almost 8 weeks

best
Nancy
by Nancy
Thu Mar 08, 2018 4:09 pm
Forum: General Discussion
Topic: Going back to school
Replies: 2
Views: 605

Re: Going back to school

hi Since 4 year olds are only in preschool, as a mom, I'd keep her home and enjoy her :) If she were in elementary school, I'd say absolutely no reason not to go back to school ! My son was in 2nd grade when he had KD and his pediatric cardiologist said it was fine to go back to school one week afte...