Search found 266 matches

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Sun Sep 19, 2010 11:46 am
Forum: General Discussion
Topic: Kawasakis? One name out of many names?
Replies: 14
Views: 1873

Re: Kawasakis? One name out of many names?

KCLP, Another problem is that many of these foods have a very high phenol content so many kids have accumulative levels of phenols that they cannot breakdown adequately and have symptoms: Headaches anxiety/irritability/agitation insomnia/restlessness strange laughter--being "slap happy" which often ...
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Sat Sep 04, 2010 5:46 pm
Forum: General Discussion
Topic: Kawasakis? One name out of many names?
Replies: 14
Views: 1873

Re: Kawasakis? One name out of many names?

Jason, Mito disorders are often from birth, although often go unrecognized in the less severe cases but they certainly can develop as a secondary problem and be simply mitochondrial dysfunction. Since free radicals/ROS cause extensive damage to mitochondria, any significant trauma or infection could...
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Sat Aug 28, 2010 2:49 am
Forum: General Discussion
Topic: cold water hives.
Replies: 4
Views: 1385

Re: cold water hives.

Yes, my son also had cold water hives the first year after KD. We took him to the river which is ice cold and saw this for the first time about 9 mos after the KD but he no longer has them--we are over 2 years out. I believe it is related to vasculitic conditions as well. It is clearly immune relate...
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Sat Aug 28, 2010 2:39 am
Forum: General Discussion
Topic: Should I check for SNPs?
Replies: 5
Views: 567

Re: Should I check for SNPs?

Yes, I believe you should check for the SNPs--I believe this is strategic in KD as well as autism, autoimmune, neuroimmune, etc. I believe this is the key that leads them down the pathway and it is particularly mitochondrial dysfunction or disorder that contributes but certainly straight forward pol...
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Sat Aug 28, 2010 2:07 am
Forum: General Discussion
Topic: Kawasakis? One name out of many names?
Replies: 14
Views: 1873

Re: Kawasakis? One name out of many names?

Ah but Jason, you forget that only 2 years ago, I was one of the ignorant masses practicing medicine and today I am awake with clarity of mind and bustling with purpose. There is hope and it may even occur in under 100 years! I may not be an alternative practitioner but I will marry the best of the ...
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Sat Aug 21, 2010 1:14 am
Forum: General Discussion
Topic: Tell me your lasting affects from KD
Replies: 157
Views: 36908

Re: Tell me your lasting affects from KD

My God this illness been horrible for so many! I am so grateful that you have all shared your stories, I appreciate the heartfelt expressions and your personal struggles. Thank you for your stories! I still share them when I do my lectures. Although I have slowed down on the talks now that I have hi...
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Sat Aug 21, 2010 1:05 am
Forum: General Discussion
Topic: Left Eye Weakness
Replies: 26
Views: 3252

Re: Left Eye Weakness

KCLP No, you are correct, you won't get any detox/chelation on the Black Bear Spray combo. There is a good mito clinic at the Cleveland Clinic which isn't too far from you but still obviously out of state so if you ever get a PPO or a POS type of insurance and you really feel it should be pursued be...
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Mon Aug 16, 2010 1:34 am
Forum: General Discussion
Topic: Left Eye Weakness
Replies: 26
Views: 3252

Re: Left Eye Weakness

KCLP That's incredible intuition on your husband's part! Glad to hear it. I'd add Hydroxy & adenosyl and a much cheaper way to get this than I thought is a website known as Black Bear.com WWW.blackbearb12.com The mix is perfect for niacinamide, adenosyl & hydroxy B 12, folinic acid, etc., and it tas...
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Tue Aug 10, 2010 12:21 am
Forum: General Discussion
Topic: Info for the kids with chronic med issues & KD
Replies: 3
Views: 1797

Re: Info for the kids with chronic med issues & KD

Yes, this is true of the various B-12's. In medicine, we started testing for MMA or Methylmalonic acid about 5-6 years ago regularly after tons of research had revealed testing for just the B 12 was rather useless. When the MMA is high, the B 12 levels are low and strangely, we give cyanocobalamin r...
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Sun Aug 08, 2010 2:12 am
Forum: General Discussion
Topic: Left Eye Weakness
Replies: 26
Views: 3252

Re: Left Eye Weakness

I agree with Liquid Amber, make sure you check mitochondrial dysfunction/disorder as this is very likely. Drooping eyelids is another problem they may have, known as ptosis but since you only mention the "lazy eye" I assume he does not have both eye issues. It is also common for vision to decline an...
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Sun Aug 08, 2010 1:55 am
Forum: General Discussion
Topic: Info for the kids with chronic med issues & KD
Replies: 3
Views: 1797

Info for the kids with chronic med issues & KD

As many of you know, I usually do not get on this site anymore due to working 50 hours a week with 2 young kids--one with multiple food allergies--and a special diet that would knock your socks off to try to keep up, not to mention a son who "recovered" from autism which is challenging to maintain b...
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Wed Jul 21, 2010 6:28 pm
Forum: General Discussion
Topic: link to vaccines?
Replies: 17
Views: 2097

Link to vaccines?

As a nurse practitioner, I will tell you that we will categorically, say "No, it is not related". A year ago, I would have rolled my eyes if you asked me that question. There is no scientific evidence and no physician or nurse worth their salt will EVER say that they are related for any reason. It m...
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Sun Mar 21, 2010 3:54 pm
Forum: General Discussion
Topic: Personality changes
Replies: 12
Views: 3733

Re: Personality changes

Here is another study on behavioral affects. When they say no changes in cognitive/academic this means they are not mentally retarded. My son has a normal IQ and no learning disabilities but clearly has "autistic" features after KD at age 4 years due to his newly acquired problems with poor socializ...
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Sun Mar 21, 2010 3:28 pm
Forum: General Discussion
Topic: Immune System Problems after KD
Replies: 16
Views: 3663

Re: Immune System Problems after KD

I can honestly say that my son is much more frequently ill than my 3 year old duaghter who didn't have KD. He used to be the healthy one with a couple of colds a year and that was that. He hasn't been well since the KD. He has at least one cold, stomach bug, or fever without other obvious symptoms e...
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Sun Mar 21, 2010 3:00 pm
Forum: General Discussion
Topic: Breastfeeding/Thrush/KD
Replies: 22
Views: 3233

Re: Breastfeeding/Thrush/KD

I appreciate the info on vit D as I know it is now recommended as a supplement for kids as well. I am not sure about the whole yeast/fungus issue. I wonder about the connection only because I see it so frequently in my fbromyalgia, CFS, and Irritable bowel patients as well as autistic kids and their...