Search found 33 matches

by CJS mom
Thu Jan 22, 2009 2:41 pm
Forum: General Discussion
Topic: what state are you in?
Replies: 90
Views: 16425

Re: what state are you in?

We lived in Louisana at the time We are originally from Ohio and A few weeks before she came down with it we had been at kings island and stayed at a hotel so its hard to say. The nurse that use to work in Baton Rouge said it wasnt uncommon to see 15 cases a month there And the Ped Cardiologist here...
by CJS mom
Mon Jan 19, 2009 6:44 pm
Forum: KD Stories
Topic: Joshua's Story
Replies: 4
Views: 1603

Re: Joshua's Story

My dd had Kd and was diagnosed in St tammany. I am surprised to hear them say at New orleans Childrens hospital that they havent seen many cases. Our nurse was from Baton Rougge and said at different times a yr she would see up to 15 cases a month. We had all our echos read from the cardiologist at ...
by CJS mom
Wed Jan 14, 2009 11:36 am
Forum: General Discussion
Topic: Gregorys home sick AGAIN!!!!!!
Replies: 8
Views: 1778

Re: Gregorys home sick AGAIN!!!!!!

I dont have any advice But I can offer my prayers and support. I will be praying for the full healing of your son. His body will be brought to full healing. every joint pain headache and stomach pain will be gone. I trust in the know that this will happen for him and to ease the worry in your mind g...
by CJS mom
Wed Jan 14, 2009 11:33 am
Forum: General Discussion
Topic: 6 mo echo update
Replies: 2
Views: 751

Re: 6 mo echo update

Thank you for the comment. I will be praying and trusting in the Knowing that your DD's echo will come back PERFECT. Everything in her precious body is healed...
Please udate us when you have it

Blessings
amy
by CJS mom
Mon Jan 12, 2009 5:13 pm
Forum: General Discussion
Topic: 6 mo echo update
Replies: 2
Views: 751

6 mo echo update

well we are 6 mo out from KD. I am please to write that our heart looks GREAT!!!! The Dr we seen today was FABULOUS. He come in and sat down and watched her echo so he could see all the aspects of her heart. I was pleased with him. He said her heart looks GREAT and HEALTHY. He was most pleased. He a...
by CJS mom
Thu Jan 08, 2009 2:26 pm
Forum: General Discussion
Topic: My intro and HELP!!
Replies: 4
Views: 1005

Re: My intro and HELP!!

my dd was atypical. Low grade fever no swollen glands no HIGH platlets sed rate was elevated eyes red and lips red red tougne that went away when given amicillian almost immediatly. My dd also had elevated live enzymes but she had a reaction to zpac at the same time so they think it was a cross betw...
by CJS mom
Thu Jan 08, 2009 2:17 pm
Forum: General Discussion
Topic: first sickness since KD HELP
Replies: 6
Views: 1139

Re: first sickness since KD HELP

My dd alsways had sinus issues. She got asthma like symptoms 2 weeks after they started aspirin. She is having a sinus issue now and a low grade fever on and off but her fever with KD was only 102. She never had high platlets they were normal and she never had swollen glands. It is so hard to not wo...
by CJS mom
Thu Jan 08, 2009 7:10 am
Forum: General Discussion
Topic: first sickness since KD HELP
Replies: 6
Views: 1139

first sickness since KD HELP

I am afraid to death. I have been sick and just knew my dd who had KD would get it cause its a upper resp infection and sure enough she wakes up today low grade fever stuff and said she didnt sleep well and her eyes are blood shot and I am freaking out. Her cardiologist APPt is monday. Please help I...
by CJS mom
Tue Jan 06, 2009 8:17 pm
Forum: Medical Articles
Topic: Methylprednisolone with IVIG in High Risk KD is Good!
Replies: 2
Views: 1158

Re: Methylprednisolone with IVIG in High Risk KD is Good!

I have often wondered if this helped my dd. She had prednisone for 4 days before being diagnosed with KD cause she had a Upper resp. virus and they thought she had bronchitis so she had the steriod and then IVIG..

Amy
by CJS mom
Mon Jan 05, 2009 8:33 am
Forum: KD Stories
Topic: Jett Travolta KD
Replies: 6
Views: 3487

Re: Jett Travolta KD

I believe Jett had seizure before he got KD. I remeber along time about when he was little Kelly Preston being on TV saying they blamed vaccines for his seizures. I dont think his seizures had anything to do with KD But I could be wrong. I think it is a horrible situation and my heart breaks for the...
by CJS mom
Sat Jan 03, 2009 5:18 pm
Forum: General Discussion
Topic: Not so rare
Replies: 11
Views: 2537

Re: Not so rare

It is a possibilit that he just never diagnosed a case of it. My dd's was hard to diagnose it. She had low fever and all her symptoms were almost gone before she was diagnosed and had IVIG they were clearing on there own by like day 4. Any how I hope we start getting answers to all of our childrens ...
by CJS mom
Sat Jan 03, 2009 8:54 am
Forum: General Discussion
Topic: Media Attention
Replies: 10
Views: 1767

Re: Media Attention

Well I will write them my dd was 12 at the time of diagnosis and it isnt so rare and it isnt just a cold like they make it sound I am angry at this. She obviously hasnt sat with her child and watch them sleep wondering what is to come. Or wait to get answers to the echo... UGGGGHHHHH

amy
by CJS mom
Sat Jan 03, 2009 8:50 am
Forum: General Discussion
Topic: Not so rare
Replies: 11
Views: 2537

Re: Not so rare

My dd was diagnosed in june 08. The nurse at the hospital in Louisiana said she seen on average of 6 a month but at certain times of yr she would see as many as 15. Now I have moved back to my home state in Ohio and my family Dr said he has never seen a case. it seems to me sometimes it is more popu...
by CJS mom
Fri Jan 02, 2009 7:02 am
Forum: General Discussion
Topic: SOY?????
Replies: 30
Views: 8269

Re: SOY?????

there is a difference int he way the soy is processed and manufactured I do know that. I have studied it also and wasnt impressed with what I read about soy. I have switched my kids to rice milk or almond milk instead. I do use a soy protein drink from a source I am very comfortable with after readi...
by CJS mom
Fri Jan 02, 2009 6:57 am
Forum: General Discussion
Topic: Stressed out Mom
Replies: 5
Views: 1218

Re: Stressed out Mom

I know it is hard. Hang in there momma. I am 6 mo out and die for our 6 mo echo and I havent slept in weeks waiting for it. well i havent slept in 6 weeks LOL. My dd's echo showed nothing either THANKS GOD. we had side effect of asprin also we got asthma from it or asthma like condition. We never ha...